- New Member
- Posts: 4
- Joined: Wed Jul 27, 2016 5:26 am
- Diagnosis: sma1
- Diagnosed: 2006
- City: Zuerich
- State or Province: Zuerich
- Country: Switzerland
Fiorello wrote:Fiorello [7.5 years old] can’t be without non invesive breathing anymore. Without he falls down to 50.
Can we do any sort of excercises or are there any other machines available?
What can wie do to avoid tracho etc?
- Medical Director
- Posts: 135
- Joined: Wed Nov 11, 2015 3:07 pm
- City: Newark
- State or Province: NJ
- Country: USA
Medical Director, VentilaMed BreatheNVS
Medical Director, Center for Ventilator Management Alternatives
Professor of Physical Medicine and Rehabilitation, Professor of Neurology, Rutgers New Jersey Medical School
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