Fluid in ears

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Fluid in ears

Postby IVUN » Thu Jun 23, 2016 12:37 pm

Question about HMV to IVUN: Can you help?

"I've been vent dependent for 34 years now. The past year and a half I have been having trouble with fluid build up in left ear and now most recent my right, Loss of some hearing comes with it. I have tubes now in both.

"I was diagnosed with Pompe at the age of 2. Trached at the age of 7. Vent dependent 24/7 since then also. I have used the LP, PLV and now trilogy vents. I'm also on control setting and have been since that age. I just saw a specialist and had a abg done which showed the arterial pco2 was at 23. She seems to think the Trilogy settings are not right for me. So pretty much different problems are occurring at the same time along with the fluid in my ears.

"Is fluid in ears a common thing with long-time vent patients? Doctor has stated its from no air flow and being on vent so long."

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Re: Fluid in ears

Postby bachjr » Mon Jul 18, 2016 7:37 pm

John R. Bach MD
Medical Director, VentilaMed BreatheNVS
Medical Director, Center for Ventilator Management Alternatives
Professor of Physical Medicine and Rehabilitation, Professor of Neurology, Rutgers New Jersey Medical School

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