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The BreatheBB Forum • Trilogy 100 settings for SMA
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Trilogy 100 settings for SMA

Posted: Wed Apr 27, 2016 2:58 pm
by DonnaLa
My daughter has SMA II, she is 29 years old, 4' 10" and 54 lbs. She recently switched to the trilogy system for bipap. An ongoing problem she has is trying to find doctors who understand SMA - in the adult world. The pulmonary dr. who prescribed this machine is not experienced with SMA. Can you please tell us what the protocol for the settings of this machine would be for someone with SMA? She is having trouble adjusting to this new machine and we would like some expert advise to take to her doctor.

We appreciate any information you can provide.

Thank you,

Re: Trilogy 100 settings for SMA

Posted: Mon May 02, 2016 6:29 pm
by bachjr
Have your daughter's respiratory parameters been evaluated? (See Evaluation & Management at .)

If your pulmonologist is not experienced with noninvasive respiratory management, then he/she should review the website and publications or your daughter should go to a center for noninvasive respiratory management:

Re: Trilogy 100 settings for SMA

Posted: Fri May 06, 2016 10:28 am
by DonnaLa
Thank you for this information - it will certainly help in explaining this to our doctors. I contacted Grace Sia about making an appointment - hope to meet you soon.