Mitochondrial myopathy

Please use this community for general discussions about other myopathies and muscular dystrophies.
adhamd
New Member
New Member
Posts: 1
Joined: Sat Jan 02, 2016 2:27 am
Diagnosis: Mitochondrial myopathy
Diagnosed: 1993
City: Amman
State or Province:
Country: Jordan

Mitochondrial myopathy

Postby adhamd » Sat Jan 02, 2016 3:01 pm

Hello
Im 34 and diagnosed with mitochondrial myopathy,
What do u advise me to do other than physical therapy, and supplements

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lousaporito
Technical Director
Technical Director
Posts: 18
Joined: Wed Nov 11, 2015 3:08 pm
City: Newark
State or Province: NJ
Country: USA

Re: Mitochondrial myopathy

Postby lousaporito » Sun Jan 03, 2016 3:20 pm

Hi, our primary focus as the site name is breathing which if abnormal due your Dx can be a major problem , so you should have your breathing function evaluated at a recommended center available on this site. Lou Saporito RRT
Lou Saporito, BA, RRT
Technical Director, VentilaMed BreatheNVS
Technical Director, Center for Ventilator Management Alternatives

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michaelchiou
Operations Director
Operations Director
Posts: 18
Joined: Mon Dec 07, 2015 8:43 am
City: Parsippany
State or Province: NJ
Country: USA

Re: Mitochondrial myopathy

Postby michaelchiou » Sun Jan 03, 2016 6:59 pm

First of all, welcome to the forum! Have you visited http://www.breatheNVS.com?
Michael Chiou
Operations Director, VentilaMed BreatheNVS


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