She is 5.5kg 70cm long. Using bipap resmed 100. Settings ipap 17 epap 9 rate 40 ins time 0.5s.
So far have trialed cough assist respironics e70 at -25+25 ins time 1s exp t 1s pause 1s.
Please help. I dont have confidence the doctors know enough as they keep telling me sma type 1 dont live past 2 yrs and i think they wrong. Premorbid my kid was only on bipap when sleeping and that was only after we saw this pulmunologist. Unfortunately they are few around in malaysia
- Medical Director
- Posts: 135
- Joined: Wed Nov 11, 2015 3:07 pm
- City: Newark
- State or Province: NJ
- Country: USA
Medical Director, VentilaMed BreatheNVS
Medical Director, Center for Ventilator Management Alternatives
Professor of Physical Medicine and Rehabilitation, Professor of Neurology, Rutgers New Jersey Medical School
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