Baby type 1

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Samaiyu
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Baby type 1

Postby Samaiyu » Wed Feb 03, 2016 6:33 am

Hi my baby 8m.o now having pneumonia. On bipap resmed 100 ipap/epap 16/8 rate 40. Started cough assist but no one experienced with it here. Whats best settings for her? Currently trying -28 +28 ins 0.5s exp 0 5s and pause 1s. No one confident to use the manual setting either.
2 feeding via nasogastric tube. But im unable to aspirate any air or anything before feeds. The doc says its normal but baby is bloated and today vomitted after feed. We worried of aspiration if continues. She already on anti reflux meds and tube changed yesterday. Is this something i should be worried about?

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bachjr
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Re: Baby type 1

Postby bachjr » Wed Mar 02, 2016 6:22 pm

Your respiratory questions can be answered in:
Bach JR, Gupta K, Reyna M, Hon A. Spinal muscular atrophy type 1: prolongation of survival by noninvasive respiratory aids. Pediatric Asthma, Allergy & Immunology 2009,22(4):151-162.
We don't use BiPAP. If the NG tube is in the baby will certainly need a gastrostomy tube.
John R. Bach MD
Medical Director, VentilaMed BreatheNVS
Medical Director, Center for Ventilator Management Alternatives
Professor of Physical Medicine and Rehabilitation, Professor of Neurology, Rutgers New Jersey Medical School


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