BreatheBB's NVS Experts in SMA

Please use this community for general discussions about Spinal Muscular Atrophy (SMA).
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bachjr
Medical Director
Medical Director
Posts: 135
Joined: Wed Nov 11, 2015 3:07 pm
City: Newark
State or Province: NJ
Country: USA

BreatheBB's NVS Experts in SMA

Postby bachjr » Wed Nov 25, 2015 1:41 pm

Please join me in welcoming our NVS experts in spinal muscular atrophy. (Experts can be identified by the NVS Expert badge underneath the username.)

Expert Hedi (Hedisoltani)
Hedi is the sister of Tara, a 21-year-old CNVS user with SMA type 1.

Expert Kathleen (Kathleen)
Kathleen is the mother of Nick, a 22-year-old NVS user with typical SMA type 1.

Expert Manny (katman73)
Manny is the father of Nick, a 22-year-old NVS user with typical SMA type 1.

Expert Matildelis (Matildelis)

Expert Michael

Expert Nick (NickP1993)
Nick is a 22-year-old NVS user with typical SMA type 1.

Expert Sue (Struble3)

Expert Tara
Tara is a 21-year-old CNVS user with typical SMA type 1.
Last edited by bachjr on Wed Jan 13, 2016 3:46 pm, edited 1 time in total.
John R. Bach MD
Medical Director, VentilaMed BreatheNVS
Medical Director, Center for Ventilator Management Alternatives
Professor of Physical Medicine and Rehabilitation, Professor of Neurology, Rutgers New Jersey Medical School

Hedisoltani
NVS Expert
NVS Expert
Posts: 1
Joined: Wed Nov 25, 2015 2:04 pm
Diagnosis: Sma
Diagnosed: 1994
City: Clifton
State or Province: Nj
Country: Usa

Re: BreatheBB's NVS Experts in SMA

Postby Hedisoltani » Wed Nov 25, 2015 2:21 pm

Hello eveyone im here to answer any questions :D


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