Search found 3 matches

by mshellt6
Sat Oct 15, 2016 2:28 pm
Forum: Other Myopathies and Muscular Dystrophies
Topic: TRILOGY 100 SETTINGS - LGMD
Replies: 1
Views: 2907

Re: TRILOGY 100 SETTINGS - LGMD

Also, my pulmonologist put me on 2l O2 all the time. I am currently only using during the day while walking. But, my family thinks I need to be on the O2 all the time because of my cardio issues. My feet, toes, and fingers turn blue. When I get on my NIV, goes away.
by mshellt6
Fri Oct 14, 2016 11:31 am
Forum: Off Topic
Topic: Welcome to The BreatheBB Forum!
Replies: 23
Views: 16436

Re: Welcome to The BreatheBB Forum!

Hello, my name is M'Shell and I am 50 yrs old. I have LGMD and am on NIV at night. I found this forum through the Breathe with MD Facebook group. I live in Tyler, Tx.
by mshellt6
Thu Oct 13, 2016 9:03 pm
Forum: Other Myopathies and Muscular Dystrophies
Topic: TRILOGY 100 SETTINGS - LGMD
Replies: 1
Views: 2907

TRILOGY 100 SETTINGS - LGMD

Dr. Bach, I have LGMD which effects my lungs and heart. My pulmonologist has put me on the Trilogy NIV, and this has been working well. I have recently had more shortness of breath, loss of energy, not sleeping well, and loss of appetite. I don’t think my ventilator settings are correct. My pulmonol...

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