Search found 4 matches

by Fiorello
Thu Apr 12, 2018 9:26 am
Forum: Spinal Muscular Atrophy (SMA)
Topic: SMA1 PROBLEM TONGUE
Replies: 0
Views: 1735

SMA1 PROBLEM TONGUE

GOOD DAY WE HAVE A PROBLEM THAT FIORELLOS TONGUE SWELLS UP AND PARTLY ALSO THE COLOR CHANGES. WHEN THIS HAPPENS HE SPEAKS LESS. DOES ANYONE KNOW WHAT THIS IS COMING FROM OR WHAT IT COULD BE? BLOOD VALUES ARE ALL GOOD.CORDIAL THANKS
by Fiorello
Tue May 02, 2017 8:21 am
Forum: Spinal Muscular Atrophy (SMA)
Topic: Catarrh
Replies: 0
Views: 818

Catarrh

Dear all
Look at a little thing and come out.(see attachmend) A catarrh attached to the tube as a cement did not detach itself either. What do you think and how to treat them? What is your experience?
by Fiorello
Wed Jan 18, 2017 10:55 am
Forum: Spinal Muscular Atrophy (SMA)
Topic: PROBLEM WITH THE NOSE (urgent)
Replies: 2
Views: 1282

PROBLEM WITH THE NOSE (urgent)

We have a huge problem with the secret in the nose. Can someone help us? We can not suck because this caused bleeding. The cough asssist is in the nose not help full. Thank you very much
by Fiorello
Wed Jul 27, 2016 5:40 am
Forum: General Discussion About Noninvasive Ventilatory Support (NVS)
Topic: SMA1 child not breathing itself
Replies: 2
Views: 2139

SMA1 child not breathing itself

am dad child from a 7.5 years sma. 1 Now one year it 24 hours non're invasive ventilation. Now we have found that he is not breathing alone and the rest in night saettigungsabfaelle has. there koennen.danke enable it again or work so that we avoid a possibility trachomenia

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