Search found 14 matches

by leoscag
Wed Mar 23, 2016 2:45 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

Dear Dr. Bach

I wanted you to know we followed all your instructions and Johnny is doing well. His ox sat is above 95 with little need to take breaths via mouth piece. He still takes breaths and is air stacking to keep himself strong. Again thank you for all you and Lou do.

Michelle
by leoscag
Fri Mar 18, 2016 3:21 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

Dear Dr Bach

I have a friend in California who has son with DMD. Her medical refuses to give her son a bi pap which he needs. She wants to know what she can do to convince her medical he needs one.

Michelle
by leoscag
Wed Mar 16, 2016 8:13 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

I reset the alarm for 95 so if it goes to 94 it will ring.
by leoscag
Wed Mar 16, 2016 8:11 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

Ok but I think hes getting tired so we can mask it? And if so how often to cough assist when using the mask because hes getting annoyed and I will have to take it off and put it on constantly. Nothing is coming up either and he sounds better as far as mucus.
by leoscag
Wed Mar 16, 2016 7:53 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

Dear dr. Bach Johnny is still recovering from the flu as you know. At the moment if he wears his mask his numbers are 97 to 100 saturation. When not wearing the mask he has to take a breath via mouth continuously. As soon as he stops he goes down to 87 then takes 5 to 10 breaths and goes to 97 then ...
by leoscag
Tue Mar 15, 2016 6:28 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

Ok we have the oximetry set up as soon as it rings he takes a breath and he does in between. at one point he asked for his mask from getting tired of trying to keep up.
by leoscag
Tue Mar 15, 2016 3:41 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

Ok without a breath for 5 min when he is playing his video games ( because the game is intense) he does drop to to 87 but can bring it up to 98 by via mouth. so im guessing its ok to stop the antibiotic as long as we keep it normal via mouth, mask and cough assisting. Right?
by leoscag
Tue Mar 15, 2016 2:48 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

So originally the dr thought Johnny had a sore throat and gave him Cefprozil 500mg antibiotic twice a day. Now that we know since last Wednesday its the flu Johnny wants to know can he stop the antibiotic? My husband said to leave him on it because his concern is that if we couldn't keep the mucus o...
by leoscag
Tue Mar 15, 2016 2:25 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

Yes I know he will need the mouth piece and mask. Im just hoping he hasn't deteriorated more from the flu. He has a great attitude as you know.
by leoscag
Mon Mar 14, 2016 8:04 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

Will cough assisting and air stacking help with trying to repair the damage from the flu? He has said and he was hysterical that if he has use the mouth piece every second it would just kill him.
michelle
by leoscag
Mon Mar 14, 2016 4:06 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

Should we use a warm mist humidifier? Since Johnny has the flu. he is coughing and you can hear it breaking up and when cough assisted he says it has come out and must went into the cough assist because we don't see it in his mouth. is that possible? And like you said there not a lot of hospitals fo...
by leoscag
Mon Mar 14, 2016 3:45 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

Thank you for your reply and right now he needs to take a breath every 15 seconds with the mouthpiece, very few without the machine, will he eventually be able to be less reliant on the machine like he use to be?
by leoscag
Sat Mar 12, 2016 12:03 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

Re: DMD Breathing Problems

Dear Dr Bach His X-ray was clear on Thursday morning so we took him home. We would of rather been in your hospital. Where you know his condition. Now yesterday afternoon he was at 98 at first. He couldn't maintain it so he asked to be masked. We have been cough assisting but how often should we do i...
by leoscag
Sat Mar 12, 2016 12:02 pm
Forum: Duchenne Muscular Dystrophy (DMD)
Topic: DMD Breathing Problems
Replies: 25
Views: 5470

DMD Breathing Problems

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