Search found 11 matches

by CharlesandLinda
Wed Jun 22, 2016 1:42 pm
Forum: Post-Poliomyelitis
Topic: Ambu bag
Replies: 1
Views: 1280

Ambu bag

The Ambu bag my provider sent is humongous! It has LONG tubing and a plastic bag on the end with an attachment for something probably a vent up around the nose piece. Do I need all of these attachments? I'll have to rent a uhaul to get into and out of the airports. I'm already going to look like a w...
by CharlesandLinda
Wed Jun 22, 2016 1:17 pm
Forum: Post-Poliomyelitis
Topic: Stacking
Replies: 4
Views: 1749

Re: Stacking

OK. See you July 6!!
by CharlesandLinda
Tue Jun 21, 2016 1:43 pm
Forum: Post-Poliomyelitis
Topic: Air travel with vent
Replies: 2
Views: 1842

Air travel with vent

Is there a problem flying with the LTV 900-950 since there are restrictions on having lithium batteries onboard?
by CharlesandLinda
Wed May 18, 2016 1:28 pm
Forum: Post-Poliomyelitis
Topic: Traveling with ventilator
Replies: 3
Views: 1575

Re: Traveling with ventilator

Is this a general statement or to a specific patient?
by CharlesandLinda
Wed May 18, 2016 1:25 pm
Forum: Post-Poliomyelitis
Topic: Difficulty with flying due to altitude
Replies: 4
Views: 1962

Re: Difficulty with flying due to altitude

Vent will be packed up as "medical equipment" and not easily accessible. Where do you get a manual resuscitator? And what do I ask for? Last trip to AZ from AL, I just got sleepy. Guess I should take my oximeter as well, huh?
by CharlesandLinda
Wed May 18, 2016 1:23 pm
Forum: Post-Poliomyelitis
Topic: Stacking
Replies: 4
Views: 1749

Re: Stacking

BP is usually low.
by CharlesandLinda
Wed May 18, 2016 1:22 pm
Forum: Post-Poliomyelitis
Topic: Neck bulging during inspiration on vent
Replies: 4
Views: 1837

Re: Neck bulging during inspiration on vent

No pain, just distention.
by CharlesandLinda
Sat Apr 30, 2016 8:38 pm
Forum: Post-Poliomyelitis
Topic: Difficulty with flying due to altitude
Replies: 4
Views: 1962

Difficulty with flying due to altitude

Has anyone who uses Noninvasive ventilation at night only had difficulty flying due to the altitude, pressure and low oxygen?
by CharlesandLinda
Wed Apr 27, 2016 7:15 pm
Forum: Post-Poliomyelitis
Topic: Stacking
Replies: 4
Views: 1749

Stacking

If I do stacking, I feel as if I am going to pass out. And this is the first or second time I stack. Am I not doing it correctly?
by CharlesandLinda
Wed Apr 27, 2016 7:10 pm
Forum: Post-Poliomyelitis
Topic: Neck bulging during inspiration on vent
Replies: 4
Views: 1837

Neck bulging during inspiration on vent

I think the NIV with the LTV 900 enlarges my neck so much on inhalation because of the obstruction in my larynx from paralyzed vocal chords that are also displaced from scoliosis. Has anyone else experienced this problem of the neck bulging out on inspiration? (I feel like one of those chameleons wh...
by CharlesandLinda
Wed Apr 27, 2016 6:37 pm
Forum: Off Topic
Topic: Welcome to The BreatheBB Forum!
Replies: 23
Views: 15567

Re: Welcome to The BreatheBB Forum!

Hi. My name is Linda and my husband is Charles. We both had polio during the 50's epidemic and are now experiencing the after effects better known as Post-polio Syndrome. I have been on Dr. Bach's NIV for about 11 years--night time only. It has added years to my life, I'm sure! I am so thankful for ...

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